Dementia has been considered an alarming disease that is characterized by cognitive decline. There are many etiological factors of dementia including neuropsychiatric, neurodegenerative, and many other medical conditions. In the advanced phase, people with dementia are completely dependent on their carers. The prevalence rate of dementia in Saudia Arabia and Gulf countries is poorly defined. Certain medications for dementia are available. However, palliative care is considered a better process to regulate dementia. The current study was designed to assess the palliative care of dementia patients in tertiary care hospitals and to evaluate the facilities for a plan of management (whether local or international). Further, the patient, the family satisfaction, and the corporation between the patient’s family and the physician were assessed. Specific key search terms including Dementia and Saudi Arabia, Palliative care of dementia patients in tertiary care hospitals, and patient and family satisfaction were used for data retrieval to get precise literature. Results showed that very fewer data about palliative care is available in Saudi Arabia. Moreover, very little data was available for palliative care at tertiary hospitals. Furthermore, when patients’ satisfaction with palliative care was observed, data from the literature showed that palliative care is satisfying for both patients and caregivers, due to the involvement of multiple healthcare staff.
1. Gale SA, Acar D, Daffner KR. Dementia. Am J Med. 2018;131(10):1161-9.
2. Ringman JM, Cummings JL. Current and emerging pharmacological treatment options for dementia. Behav Neurol. 2006;17(1):5-16.
3. Abusaaq HI. population aging in Saudi Arabia. Economic Research Department, Saudi Arabian Monetary Agency, working Paper, WP/15/2. 2015.
4. Norton S, Matthews FE, Barnes DE, Yaffe K, Brayne C. Potential for primary prevention of Alzheimer's disease: an analysis of population-based data. Lancet Neurol. 2014;13(8):788-94.
5. Lin JS, O'Connor E, Rossom RC, Perdue LA, Eckstrom E. Screening for cognitive impairment in older adults: A systematic review for the U.S. Preventive Services Task Force. Ann Intern Med. 2013;159(9):601-12.
6. Etgen T, Sander D, Bickel H, Förstl H. Mild cognitive impairment and dementia: the importance of modifiable risk factors. Dtsch Arztebl Int. 2011;108(44):743-50.
7. Mukadam N, Cooper C, Kherani N, Livingston G. A systematic review of interventions to detect dementia or cognitive impairment. Int J Geriatr Psychiatry. 2015;30(1):32-45.
8. Organization WH. Dementia: a public health priority. 2012: World Health Organization.
9. Sampimon OC, De Vliegher S, Barkema HW, Sol J, Lam TJ. Effect of prepartum dry cow antibiotic treatment in dairy heifers on udder health and milk production. J Dairy Sci. 2009;92(9):4395-403.
10. van Soest-Poortvliet MC, van der Steen JT, de Vet HC, Hertogh CM, Deliens L, Onwuteaka-Philipsen BD. Comfort goal of care and end-of-life outcomes in dementia: A prospective study. Palliat Med. 2015;29(6):538-46.
11. Murphy E, Froggatt K, Connolly S, O'Shea E, Sampson EL, Casey D, et al. Palliative care interventions in advanced dementia. Cochrane Database Syst Rev. 2016;12(12):CD011513.
12. Diehl-Schmid J, Riedl L, Rüsing U, Hartmann J, Bertok M, Levin C, et al. Provision of palliative care for people with advanced dementia. Nervenarzt. 2018;89(5):524-9.
13. Chover-Sierra E, Pérez-Ros P, Julián-Rochina I, Long CO, Cauli O. Knowledge and Attitudes towards Palliative Care: Validation of the Spanish Version of Questionnaire on Palliative Care for Advanced Dementia. Healthcare. 2022;10(4):656. doi:10.3390/healthcare10040656
14. van der Steen JT, Radbruch L, Hertogh CM, de Boer ME, Hughes JC, Larkin P, et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014;28(3):197-209.
15. Ryan T, Amen KM, McKeown J. The advance care planning experiences of people with dementia, family caregivers and professionals: a synthesis of the qualitative literature. Ann Palliat Med. 2017;6(4):380-9.
16. Harrison Dening K, Sampson EL, De Vries K. Advance care planning in dementia: recommendations for healthcare professionals. Palliat Care. 2019;12:1178224219826579.
17. Bosisio F, Jox RJ, Jones L, Rubli Truchard E. Planning ahead with dementia: what role can advance care planning play? A review on opportunities and challenges. Swiss Med Wkly. 2018;148(5152):w14706.
18. Brazil K, Carter G, Cardwell C, Clarke M, Hudson P, Froggatt K, et al. Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial. Palliat Med. 2018;32(3):603-12.
19. Jox RJ. Lost decisional capacity–lost chance of Advance Care Planning. Biol Forum. 2016;9(3):109-10.
20. Ernecoff NC, Wessell KL, Hanson LC, Dusetzina SB, Shea CM, Weinberger M, et al. Elements of Palliative Care in the Last 6 Months of Life: Frequency, Predictors, and Timing. J Gen Intern Med. 2020;35(3):753-61.
21. Gozalo P, Teno JM, Mitchell SL, Skinner J, Bynum J, Tyler D, et al. End-of-life transitions among nursing home residents with cognitive issues. N Engl J Med. 2011;365(13):1212-21.
22. Cummings JL, Mega M, Gray K, Rosenberg-Thompson S, Carusi DA, Gornbein J. The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology. 1994;44(12):2308-14.
23. Alsebayel FM, Alangari AM, Almubarak FH, Alhamwy R. Prevalence of Dementia and Its Associated Risk Factors Among Geriatric Patients Visiting Primary Healthcare Centers in Riyadh, Saudi Arabia: A Cross-Sectional Study. Cureus. 2022;14(4):e24394. doi:10.7759/cureus.24394
24. Albugami M, Qadi N, Almugbel F, Mohammed A, Alttas A, Elamin A, et al. The demographic characteristics and the risk factors of dementia in Saudi elderly. Hypertension. 2018;6(1):1-8. doi:10.11648/j.ajpn.20180601.11
25. Alkhunizan M, Alkhenizan A, Basudan L. Prevalence of Mild Cognitive Impairment and Dementia in Saudi Arabia: A Community-Based Study. Dement Geriatr Cogn Dis Extra. 2018;8(1):98-103. doi:10.1159/000487231
26. Ogunniyi A, Daif AK, Al-Rajeh S, AbdulJabbar M, Al-Tahan AR, Al-Bunyan M, et al. Dementia in Saudi Arabia: experience from a university hospital. Acta Neurol Scand. 1998;98(2):116-20. doi:10.1111/j.1600-0404.1998.tb01729.x
27. Alshammari E. Women awareness of controllable risk of dementia in Riyadh, Saudi Arabia. Pak J Pharm Sci. 2020;33(4(Supplementary)):1863-70. doi:10.36721/PJPS.2020.33.4.SUP.1863-1870.1
28. Rosato M, Leavey G, Cooper J, De Cock P, Devine P. Factors associated with public knowledge of and attitudes to dementia: A cross-sectional study. PLoS One. 2019;14(2):e0210543. doi:10.1371/journal.pone.0210543
29. Raz L, Knoefel J, Bhaskar K. The neuropathology and cerebrovascular mechanisms of dementia. J Cereb Blood Flow Metab. 2016;36(1):172-86.
30. Monies D, Abouelhoda M, AlSayed M, Alhassnan Z, Alotaibi M, Kayyali H, et al. The landscape of genetic diseases in Saudi Arabia based on the first 1000 diagnostic panels and exomes. Hum Genet. 2017;136(8):921-39.
31. El-Metwally A, Toivola P, Al-Rashidi M, Nooruddin S, Jawed M, AlKanhal R, et al. Epidemiology of Alzheimer's Disease and Dementia in Arab Countries: A Systematic Review. Behav Neurol. 2019;2019:3935943.
32. Algahtani H, Shirah B, Alhazmi A, Alshareef A, Bajunaid M, Samman A. Perception and attitude of the general population towards Alzheimer's disease in Jeddah, Saudi Arabia. Acta Neurol Belg. 2020;120(2):313-20.
33. Araw M, Kozikowski A, Sison C, Mir T, Saad M, Corrado L, et al. Does a palliative care consult decrease the cost of caring for hospitalized patients with dementia? Palliat Support Care. 2015;13(6):1535-40.
34. Sharda N, Zietlow K, Wong S, Kuchibhatla M, Johnson KS. Characteristics and Outcomes of Dementia Patients Who Receive Inpatient Palliative Care Consultation. J Am Geriatr Soc. 2020;68(9):2027-33.
35. Slachevsky CA, Abusleme LMT, Arenas Massa Á. Palliative care of patients with severe dementia. Rev Med Chil. 2016;144(1):94-101.
36. Oliveira R, Teodoro T. Palliative Care in Patients Living with Dementia: The Role of Deprescribing. Acta Med Port. 2019;32(11):735.
37. Zapponi S, Ferreira A, Galvagni P, Roccatagliata C, Rodolfi S, Spina M, et al. Application of palliative care in demented patients: the caregivers' point of view. Acta Biomed. 2018;89(7-S):78-88.
38. Patira R, Zhao H, Azizi A. A retrospective analysis of care in patients with dementia hospitalized at a tertiary medical center. Aging Ment Health. 2018;22(6):773-7.
39. Ouchi K, Wu M, Medairos R, Grudzen CR, Balsells H, Marcus D, et al. Initiating palliative care consults for advanced dementia patients in the emergency department. J Palliat Med. 2014;17(3):346-50.
40. Mufti MH. A need for managed care in Saudi Arabia. Saudi Med J. 2000;21(4):321-3.
41. al-Shammari S, Jarallah JS, Felimban F. Long-term care experience in Saudi Arabia. Soc Sci Med. 1997;44(5):693-7.
42. Abudari G, Zahreddine H, Hazeim H, Assi MA, Emara S. Knowledge of and attitudes towards palliative care among multinational nurses in Saudi Arabia. Int J Palliat Nurs. 2014;20(9):435-41.
43. Nixon A. Palliative care in Saudi Arabia: a brief history. J Pain Palliat Care Pharmacother. 2003;17(3-4):45-9.
44. Schram AW, Hougham GW, Meltzer DO, Ruhnke GW. Palliative Care in Critical Care Settings: A Systematic Review of Communication-Based Competencies Essential for Patient and Family Satisfaction. Am J Hosp Palliat Care. 2017;34(9):887-95.
45. Carter AJE, Arab M, Harrison M, Goldstein J, Stewart B, Lecours M, et al. Paramedics providing palliative care at home: A mixed-methods exploration of patient and family satisfaction and paramedic comfort and confidence. CJEM. 2019;21(4):513-22.
46. Kase SM, Waldman ED, Weintraub AS. A cross-sectional pilot study of compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care providers in the United States. Palliat Support Care. 2019;17(3):269-75.
47. Pfaff K, Markaki A. Compassionate collaborative care: an integrative review of quality indicators in end-of-life care. BMC Palliat Care. 2017;16(1):65.
48. Hanawi SA, Saat NZ, Zulkafly M, Hazlenah H, Taibukahn NH, Yoganathan D, et al. Impact of a Healthy Lifestyle on the Psychological Well-being of University Students. Int J Pharm Res Allied Sci. 2020;9(2):1-7.
49. Brovko K, Ternopilska V, Chernukha N, Zagorodnya A, Bakhov IS. Research of motives for formation of corporate culture of students in the context of the paradigm of cognitive psychology. J Adv Pharm Educ Res. 2020;10(2):195-202.
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